(Ch. 17 of my story of how I became deaf…)
As each day passed, things grew more and more bleak. The fluid backed up inside of my body from my failing kidneys continued to build, putting more and more pressure on my lungs and heart. There was great concern about potential respiratory failure as a result, so I was put on a respirator. After testing negative for Lupus, Dr. Keller called in the Kidney Specialist.
The Kidney Specialist poked and prodded me some more looking for any clues yet uncovered. I vaguely remember coming in and out of awareness, hallucinating from the fever that inflamed me, and feeling afraid of this doctor. He did not have the characteristic Southern charm Dr. Keller had. He was much too serious and not at all friendly. I remember him leaning in too close to my face and asking me in a low, husky voice, “Have you had sexual intercourse?”
‘What?! What did he just ask me?!’ I was caught off guard.
“I need to know if you have had sex?” he clarified, his eyebrows tense and furrowed.
‘Did I hear him right?’ I asked myself again in disbelief. I was still connected to the respirator, but I was too stunned to answer, even if I could.
Then leaning in even closer, he demanded to know. “Have you been sexually active?”
‘Unbelievable!’ I thought. I began shaking my head, “No! No!” My face showed both fear and protest, as I felt wrongly reproached. But, he continued to ask me several more times, even sending my mother out of the room so he could ask me again in private. He must have thought I was holding something back because she was present. The truth was, I had not yet had sexual intercourse.
But this doctor was persistent. There had been bacterial staph present in my previous Pap Smear and he wanted to know what that was about and how it was involved in shutting down my kidneys. What he and the other doctors didn’t know then was that the staph detected was most likely tied to the tampon I had removed just before my examinations began in the emergency room days before; the tampon that went uncultured and got thrown away.
Though the Kidney Specialist was just doing his job thoroughly, I became angry and distressed with him. I wanted nothing to do with this doctor! In my groggy hallucinations, this Kidney Specialist seemed to shape-shift from a doctor to a demon and back again. He was scary!
The Kidney Specialist, apparently unsatisfied with my answers, announced that he wanted to move me down to the bottom floor to do another pelvic exam. Mama said rather anxiously, “But we’ve done the pelvic exam already. We don’t need to do it again, do we?”
But, the Kidney Specialist was adamant about doing one again anyway, and wanted an ultrasound as well. Though I didn’t know it then, this doctor wanted to rule out the possibility of a previous pregnancy or an incomplete abortion. He explained to Mama that an abortion remnant could have been absorbed in my body, which would cause my white blood cell count to skyrocket.
I’m glad I wasn’t alert to his intentions then. I would have been livid with such an accusation! I had not had sex, I had never been pregnant, and I had never, ever had an abortion! But the doctors were getting desperate, looking for everything. They had to be sure.
Mama wasn’t the only one uncomfortable with plan for the second pelvic exam. There was also great concern from the other doctors and nurses who worried about moving me to the bottom floor because it would mean they would need to take me off of the respirator. But it had to be done.
I recall being wheeled out of the warm ICU room into the cool, sterile hospital halls. I remember a nurse in a green hair-net walking briskly beside me, holding a ventilation bag over my mouth. She was squeezing puffs of air into my lungs, while another person quickly guided my gurney through the corridors. My eyes rolled back with each of the florescent lights that passed overhead as I drifted in and out of awareness…
(Footnote: Many of you have been enjoying my summer story blog, and some of you have asked for more chapters. I guess the cliffhangers have some of you on pins and needles!
Don’t give up on the story yet. It has been important for me to share what life was like before I became deaf so that people understand the significant transition that occurred when I became deaf — a transformation I not only understand and accept, but also celebrate! I will increase the chapters to 3 per day. Remember, this is a story blog. You’ll need to follow along chronologically for it to make sense. Keep on reading! These middle chapters entitled: Deaf or Death tell the dramatic story of the illness that took my hearing. Hang in there! The final chapter will appear on August 8th, 2007. It’s a good summer read! Stay tuned…)
















I’m sorry to hear that the demon-secialist was giving you a bad time. I had been asked by the doctors and my mom if I had a sexual intercourse which I never had prior to my illness when I was very sick with TSS. I said no and I was going to tell the doctors to GET LOST if they asked me again.
Due to the bacterial stap in my pelvis area, I lost my virginity.
Left by Lisa C. on July 23rd, 2007
Thank you for being so generous and add two more story blogs daily so we can get our fix. This story is very riveting!
Left by Mishkazena on July 23rd, 2007
What year did you get sick?
I remember that year, the epidemiologists at CDC brought the forms for us to transcribe data in the computer. Names were removed from the forms.
http://www.cdc.gov/ncidod/dbmd/diseaseinfo/toxicshock_t.htm
I still work at Centers for Diseases Control, but no longer work in that branch.
http://www.cdc.gov
Left by Peachlady on July 23rd, 2007
Hardly can wait for next chapters! The kindey doctor sounds awful! Wondering if today the hospital will save the tampons to test for TSS? Is it part of the procedure in all hospitals?
Left by Kim on July 23rd, 2007
you actually are writing a book! great storytelling.
Left by nerdyguy on July 23rd, 2007
Hi Lisa. To clarify, the Kidney Specialist really wasn’t giving me a bad time. He was just doing his job. It was my hallucinations that made him scary. I’m glad he was asking questions. But to a 17 year old, being asked questions about sex was really hard to accept.
Mishkazena, I love that you are drawn into my story. This is the effect I had hoped to create. I look forward to your occasional feedback. I find you a prolific writer as well.
Peachlady, I got sick in 1981. I was told that I was Dr. Keller’s first case of TSS. I imagine they have charted me in their numbers and statistics somewhere. The interesting thing was that I had major blood transfusions that Summer with the kidney dialysis I had. that Fall, I was told Fresno began seeing HIV/AIDS passed through unclean blood in some transfusions! Eeek! It was that Fall that they began to screen blood donations. I’m glad I wasn’t given tainted blood!
Kim, Thanks for being a loyal reader. As I said in my response to Lisa above, the kidney Specialist was probably just doing his job. I’m glad he was thorough. He was just a little scary. Brrrrr…… I’m not sure if it is a standard procedure now to culture tampons when people come in, but I imagine once TSS was on the rise, they probably looked at things more carefully. They didn’t know it was TSS until after I was discharged from the hospital. So I don’t think it’s easy to find right away. Stay tuned. I have a chapter explaining more about TSS itself….
Nerdguy, yes, this is actually part of my book. I’m hoping to have it published at some point. Your comments and feedback are important to me. People seem to be enjoying the story. It’s pretty dramatic in parts. I will complete the summer story blog on Aug. 8th. Keep reading!
~ LaRonda
Left by LaRonda on July 23rd, 2007
Peachlady,
I got sick in 1978.
Left by Lisa C. on July 23rd, 2007
I H A T E that question from the doctors, “Are you sexually active?” Particularly when the conversation is through an ASL interpreter. Ugh. In your case, I can understand why he asked you (and you were not deaf then, so no interpreter). His reasons all made sense. It was his job, but perhaps he lacked bedside manners?
I might not comment here with each post, but I am here listening and will wait until you are all finished. It is YOUR story, ours can come later.
Hugs, Lantana
Left by Lantana on July 23rd, 2007